If you have epilepsy you might have encountered someone online or in person who is dealing with this. Psychogenic Non-epileptic Seizures also known as PNES is when someone is having reoccurring events that resemble epileptic seizures but the characteristics of electrical charges that is associated with
epilepsy are not present. It is said that 20-30% of patients are diagnosed with PNES.
Before writing this I had no idea what PNES was at the time. That ended when a lady commented on my Facebook post telling me that she had this condition. It surprised me and interested me at the same time. According to the Epilepsy Foundation this condition is triggered by psychological distress in the brain which is different from brain electrical discharges. It is still unknown to most individuals but in a few years more people outside of the medical industry will know about it. Selim R. Benbadis, M.D., Director of Comprehensive Epilepsy Program, Professor, Departments of Neurology and Neurosurgery, University of South Florida and Tampa General Hospital said, "In addition to being common, psychogenic symptoms poses an uncomfortable and often frustrating challenge, both in diagnoses and management." I feel that with epilepsy you go through the eeg process, get some blood tests and then get monitored in the hospital and that can determine if you have epilepsy. With PNES it might be difficult to find because you can be fine at one moment and not be all of a sudden. I remember being at home and crying or getting too angry and my dad would be scared as he tried his best to calm me down. I still get upset and frustrated easily and my brain would hurt and I would start shaking and it is something I have difficulty controlling it but I try my best. We should all take in what we have and charish it because at the end of the day we are lucky to be here.
Psychogenic Non-epileptic Seizures are probably one of the most frustrating conditions that are close to epilepsy I have heard about. The patients probably don't feel the stress and loss that we do but unable to diagnose it easily can become frustrating. If I was diagnosed with it I would probably not be able to cope. It's like not knowing who you are because you have seizures but you don't even have epilepsy. One day I hope it will brought into the lime light more frequently. Sorry for such a short post I am under the weather and am not at my best today. I will get better soon, I just know it.
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I post daily about my life as well as tips on how to deal with epilepsy. I have a youtube channel where I will continue to spread awareness about epilepsy.