Todays talk is about epilepsy and teenagers. I decided to write about this because even though I am 18 and considered an adult I still feel like a teenager sometimes. From my constantly complaining about high school drama to my tantrums with my father, whom I love dearly.
Epilepsy is more than just a stare and I have said this many time than I could count. That's because it is true.
There are people who will look at us and think we are fine because we don't look "different." That term is actually a false representation because we do all look different. I have brown skin and black hair and my jaw line is a bit sharp. I am 4 foot 10 inches and I love cute things. Not everyone is like that, that's why cops ask for a description when you get assaulted or robbed or when a murder goes down. So what they really mean is I look "normal" and that's the struggle for people who have epilepsy and other conditions.
Teenagers with epilepsy are going through so much and sometimes people just say "well so is my daughter/son but I don't whine about it." You are exactly right, your children are probably dealing with a life crisis but it's different. That's when I start to get in trouble because then people think I thought that everything should be about me. That wasn't the case and I wish people would listen when I said this.
I am not advanced with epilepsy but as a teenager I can tell you the emotional and physical effects that I have had to deal with. I remember having a seizure and suddenly falling asleep for a few hours. It was horrible because I know I have probably frightened a lot of people in middle school. I can remember my dad constantly be worried if I got too angry or too upset because it could trigger a seizure. I was pretty much clueless about the whole seizure condition until high school. All I really new was that I had to take medication for a disability I have. I used to have a seizure every year and then once I got to high school is got controlled.
I thought high school would be fun but it wasn't, it was full of drama and I guess I was into that at first but as I got older it went away. Now when I say my epilepsy was controlled that doesn't mean it was gone. If it was gone then I would not have to take medication anymore, but I do. It basically meant the activity was still in my brain but it was being toned down a bit so it wouldn't cause a seizure if that makes sense. People who don't have epilepsy have a calm brain and maybe they will get stressed but their brain isn't constantly on fire.
Being a teenager with epilepsy has really effected my life and the others who have dealt with epilepsy. You can't drink alcohol which is good and bad. The only reason I want to drink it is because I want to feel the slightest normal or feel like I accomplished something even if it's stupid. As a teenager that's when it all starts to matter. You crave to become seizure free even if it means you might have to take medication for the rest of your life. I know I have too much seizure activity when I sleep so I am not allowed to drive and I was devastated. My boyfriend is supportive and drives me around but I don't take advantage of him. It's also annoying when you have to rely on people for ride. Sometimes teenagers are told they are not allowed to work. There are been instances where they would need to wear helmets when they are walking around and wear floaties when they are swimming.
I'd like to explaim more but I do not want to make this post too long for you all so if you have any comments don't feel afraid to contact me. I hope you are having a nice day and can't wait to hear from you soon. Also please take my survey it is under the tab that involves my writing.
About My Blog
I post daily about my life as well as tips on how to deal with epilepsy. I have a youtube channel where I will continue to spread awareness about epilepsy.